Pamela Artigas is the President and Executive Director of The Association for the Bladder Exstrophy Community (A-BE-C), where she has spent more than a decade building trusted relationships across the international pediatric urology and rare disease communities. She serves as a strategic bridge between families, global surgeons, hospitals, and researchers to advance patient-centered advocacy and family-centered care.
Under her leadership, A-BE-C has expanded its global support networks and connected families to multidisciplinary care teams worldwide, including extensive work in India and Uganda. An international speaker, she has presented her work across Europe, the Americas, Africa, and Asia, and is the co-author of Advocacy for the Exstrophy Community. Pamela brings a powerful blend of professional leadership and lived experience to her work as the adoptive mother of two medically complex children